When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Sunday, March 25, 2012

Veronika has her Second Skin(miracle suit…..)

Wow, wow, wow, wow, wow…..

I never thought Veronika’s second skin would make such a difference the minute she put it on the first time.

Even though this is her “I’m not to sure about this” face, I was shocked just how straight is makes her stand, and when she is sitting, there is no slouch…..well there is that much support in it, that she has no choice but to stand tall. Maybe it needs a much more suitable name, rather than ‘second skin’. I think Miracle Suit would be more applicable.

The main thing we have noticed since Veronika has had her Miracle Suit include improvement in her posture. This is because she has so much support in her core now. In turn this has caused a major change in the function of Veronika’s left hand. AMAZING how supporting the core of your body, can  cause your hand to work in a more natural way! As soon as the Second Skin therapists put Veronika into her suit, they sat her down on a little bench. I held some toys up above her left arm, and she immediately used her left hand to reach for the toys, instead of doing the bilateral right hand across her body.

This week Veronika’s therapists wanted to see her. You can see in the picture below that her left foot is pointing in, so one of her physiotherapists had ordered in some theratogs strapping tape, to strap her left leg into alignment. This is the before photo, but after she strapped her leg, her foot was in pretty much a perfect position(sorry I havent got a picture yet!)

Veronika is using her walking frame so much more. The front wheels are locked so she can’t steer it yet, not until she has much better control going in a straight line. We have been taking the walking frame out with us a lot more, there is a knack to fitting the pram and the walking frame, as well as the boys school bags in the boot of the car!

Veronika off to see the Physio at St Giles.

We also went to see Veronika’s private Occupational Therapist this week. She was amazed at the difference in Veronika…..the differences the Miracle Suit had made. Posture, gross motor skills, fine motor skills, endurance, but the BIG surprise that she noticed was that Veronika is making so many more sounds. She is trying hard to copy words that we are saying to her. We arent to sure if it’s a coincidence that she is making more sounds, if it is the second skin taking the pressure off her core, which in turn is giving her the chance to use that energy in another way…..verbally.
Cant wait to see what the Speech Therapist has to say about that this coming week when we see her!
And again we must say a BIG THANKYOU to TasPorts for flying us to Sydney for Veronika’s 1st appointment to have her assessments and measurements taken for her second skin, and also to Cerebral Palsy Tasmania for funding Veronika’s suit.

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