When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Sunday, March 25, 2012

Therapy, Therapy and more Therapy

We are well and truly back into the swing of therapy, therapy, therapy. It’s fabulous that we live where we do, and that we have to opportunity to go to early intervention therapy…..but at the same time, it’s so much running around. More so in the school holidays, Veronika has 2 older brothers, and I find myself dropping one of the other off to the grandparents, so I don’t have to take them both to Veronika’s therapy sessions. When I am being charged $155/hour for her private therapy I kind of really want to be able to fully concentrate on what Veronika’s therapists are telling me.

Her OT was so super happy when we saw her this week. We have been using a pressure vest to help with her core stability, which in turn helping her left arm function a little better, because she isn’t having to work so hard at stabilizing her core. This all means that Veronika is sitting a lot ‘taller’, and standing a lot ‘taller’, because her muscles are supported, as well as she is getting much better function out of her left arm. We still have so much work to do, but it’s so encouraging to see how much difference something can make in conjunction with all the therapy we do at home too.

Veronika is loving trying to use her walking frame, and most of the time she is smiling and happy.
She is getting stronger all the time. Its fabulous to see. But the OT is now concerned about her left foot, even though she did say that legs aren’t her thing(its more of a physio thing). So she suggested I go and get some pressure shorts made, which I did this week. We are hoping that they will help stabilize her pelvis, so that her muscles arent working as hard to get her leg in a natural position, thus fingers crossed she will get better function out of her left leg.
Marcus picked Veronika’s pressure shorts up on his way home from work last night. She had them on for a little while, but I didn’t get a photo. And today was way to hot to put her into them. They have velcro down the sides so we can get them on/off easily.
So hopefully between the pressure vest and shorts, we will be seeing more progress…..oh and of course all the therapy, therapy, therapy we do too.

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