When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….
I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.
Wednesday, August 29, 2012
4 years, 3 months, and 2 weeks of therapy = a whole lot of tears
and 2 weeks ago
we began a roller coaster of therapy sessions….
as most of you know, Veronika suffered a massive bilateral stroke before she was born,
it SHOULD of killed her, we were told, it would have killed any adult…..
Veronika had her 1st brain MRI when she was only a week old….
and the results were devastating….
“Veronika has an injury to the area of her brain that we believe will affect her movement down the left side of her body, and she will NEVER walk”….
the conversation I had that day with the NICU doctor, is as clear in my mind as if it was only yesterday….
I was shattered, it wasnt FAIR that Veronika had not only Down Syndrome, and a congenital heart defect, that we were told needed open heart surgery to repair, along with severe hydrocephalus(swelling around the brain) that they were trying to decide if she needed urgent brain surgery to insert a shunt to drain the fluid….
now she was never going to walk, and Veronika was only a week old….
the physio had already started….the physios came and saw Veronika every day she was in hospital when she was born(almost 6 weeks)…
and the physio continued….and continued
after I was given the devastating news, I cried for 2 weeks….
then decided Veronika would walk….
and my goal, she would walk into kinder on her 1st day of school….
…yesterday we went to see Veronika private physiotherapist Lewina,
Lewina’s goal for the therapy session was for Veronika to sit on the chair, stand up, stop and TAKE A STEP….
6 weeks ago when we saw Lewina for Veronika’s therapy session, Veronika could manage the sit, and the stand….
so this was a HUGE goal…. one that Lewina and I both BELIEVED to be possible…
there were a whole lot of tears 4 years, 3 months, and 2 weeks ago
and yesterday there were a whole lot more….but yesterday they were HAPPY tears..