When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….
I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.
Tuesday, May 10, 2011
Opthamology....that word cracks me up!
So we went for a wander to see Veronika's friend Natty, who was up on the Paed ward for a few minutes and then wandered back to the Eye Clinic to see the nurse. Yes the eye drops were working, but "there are still a few people ahead of you, so if you want to go for a walk and come back in 30 mins or so". Silly me decided to go down stairs to PACU to sort some things out, and Veronika really didn't like the sunlight as her pupils were fully dilated by that point......Oops.
When we finally saw the Opthamologist, he said Veronika isn't short sighted, but she has a stigma in both eyes, she doesn't need glasses yet, and to come back in a year.
So then we went to Audiology as Veronika is booked to have an MRI of her brain next week, and the ENT specialist said if Veronika ever has a anaesthetic for anything to get a hearing test done while she is under the anaesthetic. So I went to check that it had all been sorted, well I was pleasantly surprised when the Audiologist knew all about it, and she said she would call MRI again and check everything is good to go. We left just after 1pm, it had been a long morning. The Audiologist called me back on Monday, and everything is sorted hearing test wise. Now just to see about getting a pre admission appointment for the anaesthetist, which she has to have because of her multiple disabilities.......sometimes I just think it shouldn't be so much work checking that everything is right to go, but then its gotta be done and I would feel guilty if something got missed.....
Veronika major achievement of the week is that she has learnt to climb up on the dining chairs.....and doesn't she think she is just to clever.....she sat up at the table this morning and had some cranberries, even thought she could hardly even see the table top!