When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Wednesday, May 4, 2011

Fantastic News from our trip to Melbourne

Well we finally had some good news about Veronika on Monday. We went to see her paediatric cardiac cath surgeon in Melbourne. Last year we went to see him in July after her having pneumonia every 4 weeks. She had a hole (ASD) in her heart that was 19mm. He decided that it needed to be closed. He put her at the top of the waiting list and we went over in November for surgery. However when we went back her hole had reduced to 9mm. He decided not to operate as he had never seen a hole as big as she had reduce in size as much as it had in such a short amount of time. So he said to come back in 6 months.....fast forward to Monday. Veronika's echo showed her ASD to measure 4mm....Yeah. So no surgery. And we don't need a cardiac review for 12 months, and he is happy for us to have it in Hobart, when the cardiologist visits. I am so happy to have some great news at last!!!!!!

Veronika loved the plane ride over and back. As soon as we landed she started signing "more".  

Plane trip on the way home, kicking back watching my iPad

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