When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Friday, March 25, 2011

Pram shopping!

Veronika and I started this week by gate crashing the hearing impairment Playgroup. 2 of Veronika's friends go and I have been thinking about taking her for quite some time now, and I finally had a day free that playgroup was on. So we turned up and introduced ourselves. Veronika had a lovely time, and I really enjoyed chatting with new friends and learning heaps of new signs. Even though Veronika can hear(even if the audiologist disagrees!) she isn't talking apart from the occasional 'mum', 'dad', 'up' when she wants to be picked up, 'um' when she wants something to eat or drink. Veronika has been effectively communicating for a while what she wants with a few basic signs, more, finished, swim, biscuit, mummy, for a while. But I thought it would be a fantastic opportunity to take her to TasDeaf playgroup and we can learn so much more. It is always going to be difficult for Veronika to sign some things, as a lot of signs are using both hands and with her Hemi plegia this will make it a little difficult, but I know with her determination she will adapt them to suit her fine motor skills level. So all in all cant wait to we can go again next time and learn more.

The next day saw us venture out to get the moulds made for new ear plugs. As Veronika has grommets in both ears we have to keep her ears dry while at hydrotherapy and at home in the bath and shower. She has had her ear plugs for about a year now, and I think her ears must of grow as the plugs seem to be falling out more often than usual, some of that is also because she keeps taking her head band off that helps to keep them in! The other problem is that the ones she has at the moment are her original ones, and they are clear! have you ever tried to find tiny clear ear plugs in a swimming pool.....do yourself a favour and put it on your list of things NOT to do in your life! So I asked this time if they can colour them, and they can. They lady suggested a different colour for each ear, and I though why not, so we are going red for right and blue for left. I also thought that this could help me decide which are easier colours to find for future sets of ear plugs! So roll on our appointment in 2 weeks so we can try them out.

The day after that we went looking for a pram with Veronika's physio. She has outgrown her pram(which was mentioned in previous blog a while ago), and after not being able to decide between a wheel chair or pram, I decided a pram is more suitable at this point in time. So off the the baby shop we went. I came away slightly disappointed as was really hoping to find the perfect pram NOW. There isn't much choice in bigger prams, well actually I have a choice of 1 pram. It has some really nice features, but I am just concerned as it fits her really well now, and doesn't have as much 'growimg room' as I was hoping for. Not just seat to head height, but knee to foot length. Her feet rested perfectly on the foot rest now, which means I am going to have to try to figure out how to modify it to suit as she grows. I have some ideas about that, but there are some people I need to talk with first. So the next week will see me doing a lot of research and asking lots of people what prams they use, and hopefully I can make a decision really soon, so we can get onto organising it through the physio.

1 comment:

  1. good luck with finding a pram for your little princess!!