When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Monday, February 28, 2011

What a busy week.....ending with a weekend away at Down Syndrome Tasmania Family Camp

Our Family had a lovely weekend away at Down Syndrome Tasmania Family Camp. It was a long drive there Friday(around 4 hours), Jordan, Jakob and Veronika all behaved really well in the car. There wasn't even the usual arguments from the boys, they talked and played games. We stopped at Anvers and treated ourselves to Hot Chocolates, which was about 20 minutes before our destination. Veronika was spoilt and we got her a babycino, she doesn't always get one as she shouldn't have dairy, and she had a piece of fudge. We did however pay for it that night, as she had a belly ache and didn't want to go to sleep. It didn't help that I forgot to take her teddy bear that plays music, that she has every night.

At dinner Friday night, we met up with friends we made last year at camp, and met people who hadn't been to camp before. Over the weekend we were treated as there were child carers to look after the children, which meant that we were able to listen to the guest speakers. There is so much information out there, and its always important to share what we can. It was amazing how well all our children played together. I don't think there were any fights. I was extremely proud of Veronika. At last years camp, when she went to childcare, she would cry so loud that I couldn't even leave, this year, when I took her in, she played with some other children her age, and it wasn't to about an hour and half later that she became upset.

Saturday night our BrightStars Dancing group were to perform. The north west group taught us southerners a new dance in the afternoon, and everyone picked it up really well. Veronika fell asleep during the practise! As our southern Tas BrightStars group only just started late last year, it was our 1st performance. I danced with Veronika, and as she isn't walking, she was strapped into her pouch on my side and we had a great time. Its so special that even thought she cant walk and dance, she isn't excluded. Veronika loves the music, and smiled and laughed the whole way thru the 2 dances we did.

This is Katie, Freya, Veronika and Me(Kylee) after our dancing at DST camp. Freya is one of Veronika's Best Friends. Isn't she just too cute.

And now to share some pics of our week last week.....I took Veronika to play with Willow, her BFF on Monday, and Sally had made Veronika a Super Girl cape too.
 V for Veronika and W for Willow

I asked Grandad to cut the legs off the easel as Veronika cant stand at it to use the chalk board. Now she loves to sit and draw. And not to be surprised the boys have decided that they want to use it again too, and its too short for them!

What a busy week, along with the starting to organise the fundraising for "my Little Project", Veronika's Hydrotherapy spa, we had 6 doctor and allied health appointments over the week, so I really needed the weekend away! Thanks again everyone for your support of our beautiful Princess, and don't forget to come to K&D Glenorchy this Sunday 6th March, and buy a sausage from our sausage sizzle, the beginning of our fundraising, Please!

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