When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….
I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.
Thursday, February 24, 2011
Thankyou, Thankyou, Thankyou....No really THANKYOU.
My friends, my community, has embraced my little project. I am speechless, and for those of you that know me, that NEVER happens. Words cannot express how i am feeling, overjoyed, elated, blessed, almost in tears of joy. I think one of the most important things Veronika has taught me is its OK to ask for help, and its OK to accept help when offered. The "no you don't have to do that", is now, stop, think, breath, "THANK YOU that would be fantastic/awesome/a huge help". It is very humbling to ask for help and even more so to accept it.
SO A BIG THANK YOU, THAT IS AWESOME.
Please keep Saturday 28th May free. A kids show is planed for the early afternoon(1-3) and an adults one for the evening. Sallyanne what started out with an idea from your beautiful girls has become something i never could of imagined in a million years. Sally called in a favour from "Magic Bob" as her daughter Willow would sign, and he read my blog on Veronika Anne and posted it to his facebook, and shall we say the rest is history. Sally, Bob, Hobart, Tasmania and beyond, you are amazing. I don't know how i ever will be able to thank you enough for your support of my beautiful Veronika, I pray that thanks enough will be when Veronika Walks and you will all know you had your part to play in it. I look forward to the day we raise enough to get her that Hydrotherapy Spa she needs, she will then be able to have a hydro session daily, her muscles will strengthen.....and one day Veronika Will Walk, and I am sure there will be a lot of tears that day. I am almost in tears now, as i write about it.
This week has been one of the busiest medical appointment wise we have had in a while, 3 yesterday, 2 the day before and 1 the day before that. Today i had a day off and went and watch my boys in their school swimming carnival. It was wonderful to spend the day with them and not be looking at my watch, because I didn't want to be late for Veronika's next appointment, these days don't happen often enough. My boys are just the bees knees, they adore their baby sister, and I love them so much too.
My mind is racing, it has been wonderful to meet Bob, and for him to tell me about his ideas for the shows, for all the support his friends are throwing behind Veronika Will Walk. I am at the same time really tired, its been a big week appointment wise, ideas wise, and emotionally. I am wondering if i should even post this tonight, will any of it make sense!?!?
On another note, we got a letter from the hospital yesterday with a date for Veronika's next MRI(May 17th), the one the baby neurologist and the paediatrician requested. SO now I think, do I really want Veronika to have another anaesthetic? Well yes i guess that will be OK. Maybe I should call the paediatrician and ask her if we can book a hearing test for the same time, as I have been told by the ENT specialist the only way to get an accurate result is to do one while she is under an anaesthetic. Maybe I should put that on my to do list! Today we got another letter from the hospital, for her orthoptics and ophthalomology appointments, for next month. Now I am praying that there is no problems with her eyes, i mean i don't think there is, but then i didn't think there was any issues with her hearing, but she failed that test miserably.
I think that's all I have for now. I must go get some rest.