When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Saturday, April 23, 2011

Look out for the Sunday Tasmanian Tomorrow

On Monday we saw Veronika's dietitian. She has recommended that for 2 months we eliminate wheat, gluten, eggs, dairy, soy and rice milk....in the hope that Veronika will start to eat. So far for the rest of the week, it hasn't really had any effect on increasing her food intake, but I will continue to persevere and hopefully she will soon start to eat. Then in a couple of months the dietitian has recommended that we redo the allergy tests to see if anything shows up.

Then we went to see Veronika's Physio. While we were there I got a message to call Hannah from the Mercury, as she had come across Veronika's face book page. Hannah interviewed our family last November before we went over to Melbourne for Veronika's heart surgery. Hannah remembered Veronika, and called to ask if she could do a story on Veronika and the Veronika Will Walk Gala events, for the major fundraiser for the hydrotherapy spa. We arranged for  Hannah to come to St Giles Pool where we go for Veronika's hydrotherapy, so she could talk to us and also take some photos of her in the water. The story will be in the Sunday Tasmanian tomorrow(Easter Sunday).

The last couple of days I have been trying to find dairy free chocolate Easter eggs, that also are soy free......I haven't managed to find any but today when I went to  Eumarrah, the lady was really help full with other things and gave Veronika some cranberries to try and she loved them, she was signing "more" so I brought some for her, maybe that will do as a Easter egg substitute.....will have to let you know about how that goes....

No comments:

Post a Comment