When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Tuesday, April 5, 2011

Brain Injury Rehab Specialist, Formula and Veronikas loves her new Wheels

Today Veronika had her appointment with her Brain Injury Rehabilitation Specialist. He was really happy with Veronika's progress over the last 6 months. Last time we saw him, he wanted Veronika to be weight baring at a coffee table by the next time he saw her. I remember as we left last time the physio said "well then we have a lot of work to do", my reply "and I have to buy a coffee table". Her Dr was   especially happy that she is now pulling to stand, climbing up onto the couch, and the most impressive and a kind of a cruise around the pool. About 3 weeks ago, when we were at hydrotherapy Veronika had a toy roll along the side of the pool. She looked at it, then looked back where it rolled from, then looked at it again, looked back in front of her and then she slid her hand along the rail. her right leg thru the water and then kind of dragged her left leg and arm, while I was supporting her around her hips/pelvis. SO its kind of a cruise around the pool now, Veronika has made the connection that if she wants to get somewhere, she needs to use her legs! She is still a very long way off being able to do that herself, her balance standing still, needs a lot of work, but we WILL get there, and one day she WILL WALK. The Dr today wants her to have a hip xray, which is a routine thing, so will have to book that....all in all, the Dr was happy, so I am Happy. We talked about how its just been the last 6 months that the benefits of all the hard work are really starting to pay off, Veronika's progress will always be slow, but now that she has achieved a couple of really big milestones like standing and climbing I can see the results of the endless physio and OT sessions.

Another win today, Veronika's script for her formula came in the post from the Paed, and she managed to get in on authority. SO its not going to cost a fortune, just the usual amount. So happy about that. So glad I didn't stress about it all weekend!  I am still thinking that I might ask to see a Paed Gastroenterologist anyway, next time we see the Paed, to try to figure out why Veronika wont drink anything other than her formula, and why she isn't interested in eating ANYTHING. Worth talking to the Paed about anyway.

Veronika has been using the new wheels we borrowed from St Giles. She loves them, and we have been getting lots of positive comments about how good she looks in them. But then My Baby Girl looks good in anything!

And had a talk with Principal of St Cuthberts school today(school Veronika's brothers Jordan and Jakob go to), so watch this space for more details to follow of a VWW fundraiser......

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