When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Sunday, June 24, 2012

Penelope Purple and Celebrating Young Carers…

What a fabulous weekend we have had…

Yesterday Veronika and I went to a book launch…. Penelope Purple by Michelle Pears.

It was a Purple Party to celebrate the book launch…a room full of Purpleness and Happiness
We had a great time there with Veronika’s best friends, singing and playing games, and of course the official reading of Penelope Purle.

Willow, Veronika and Susannah

Michelle reading Penelope Purple to all the children…thats Veronika you can see with the pig tails and curly hair ties. Michelle asked the children who loved purple and Veronika put her hand up!

 A sea of Purpleness

Then today, we celebrated Young Carers, FESTofALL, and all that our Young Carers do. My boys Jordan and Jakob(also known as Hotdogz) do so much to help with Veronika and all her therapy. They have  missed out on going to things in the past because Veronika has been unwell(either at home or in hospital).

They often entertain Veronika and help her with her therapy, they are patient with her while we are out and she wants to use her walking frame.

and today was all about them….this morning they went to Gold Class at the movies to see Brave with Tascare. They were so excited to sit in the big comfy chairs, and have a drink and popcorn delivered to them…

then we went to ZooDoo….Jordan and Jakob had a fabulous time along with their friends Julie and Sissy(Veronika’s best friends sisters). 

There was so much fun to be had.



There was lots of animals to see

Jakob feeding the tiger!

 Jakob and Sissy

 Jordan and Julie

Jakob wanted to be a white boxing kangaroo!

We want to say a big Thankyou to FESTofALL for a wonderful day, its fantastic that our children can had a day of  just being kids. Was super special to spend the day with my boys while Veronika had the day with Oma and Grandad.

No comments:

Post a Comment