Monday saw us go to Veronika’s appointment with the brain injury rehab specialist. He was impressed how well Veronika is doing. Last time he saw her she wasnt even crawling, and now she is starting to use her walking frame. When we got there I hadn’t put her theratog tape on her left leg, that helps align her leg and pelvis, as I thought he would be needing to examine her and would need it taken off. So after she walked a little in her frame, and he was talking about her leg being turned in, I said that I had some theratog tape for her leg. So I put it on her after he had examined her, and he was shocked how well it straightened her leg. He was actually amazed at how well it worked(I think he might have been a bit sceptical that a piece of theratog tape would make such a difference). I asked lots of questions, and the Dr wanted to know what therapy we were doing with her…..lots!
Then came the biggest shock, I have been processing it all week…
a good shock,
actually a fantastic shock
something a Specialist has NEVER said to me before.
He said that “I can’t guarantee it, but I can see down the track that Veronika might be able to do away with her walking frame and walk without it”.
That was a pretty BIG statement for me to take in….as I said its something a specialist has never said to me before, actually any of Veronika’s Doctors have never said anything like that before.
We chatted about her progress for a little longer. He wants her to see a speech pathologist to see if there is any underlying medical reason she isn’t eating or talking. We know that children with Down Syndrome have speech delay, but he just wants to make sure that there aren’t any other things going on that we don’t know about….other than that, he will see her again in a year.