When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Tuesday, September 20, 2011

I must be the Proudest Mummy, just about now…..

Veronika’s Physio set me a bit of a challenge. She wanted her to start to ‘cruise’ on the furniture, before we can talk about walking frames. Well that was just under a month ago. So we have been working really hard at home, 1st getting Veronika into a standing position. She just wants to climb on everything. Which don’t get me wrong, I love that she can climb onto the couch, and onto the blanket box etc, but when you are trying to teach a 3-year-old to stand, I mean stand still, not pull to stand, then up on the couch. So I have been working really hard, at getting her right foot under her, to stand up, and stand still, with her feet in a good position. Then to keep her entertained while she is standing there. We have done LOTS of puzzles during this time, and each time I would get Veronika to pass the Puzzle pieces to me, as we(I) talked about what the puzzle was about. Then I tried very patiently to get her feet moving across to get the puzzle pieces….click below to see the result.

veronika cruising for chocolate 149

and I think right about now I am the proudest I have ever been. Veronika continues to inspire me, she really is my Hero. Her determination is amazing. Her resilience to try, try again is never-ending. And hopefully that doesn’t change over time.

Veronika continues to learn new signs, and last week she mastered ‘love’. She signed ‘love’ followed by ‘Mummy’….I then asked her who else she loved, and she signed ‘W’(Willow) her best friend. Was just too cute. I find it absolutely amazing how much information Veronika seems to process. I was telling her speech therapist a couple of weeks ago, how at the dinner table one night, I was talking to her, and asking her questions. I could see her deep in thought processing the information, before she signed her answer. I can’t for the life of me remember what it was actually about, all I can remember is just thinking how much Veronika seems to understand.

Veronika is also excited to tell you that she will be an Ambassador for St Giles Walk With Me Hobart, on October 16th. We are looking forward to raising awareness for people living with a disAbility in our community. I was thrilled when Veronika was asked to be an Ambassador, and naturally yes was the answer.
Veronika and Willow have joined forces, and would like to extend a warm welcome to everyone to come and Walk With the SuperGirls…..


I have more to tell, but I also need to get some rest….so maybe next blog…

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