When your baby is 1 week old, and she has her 1st MRI and the results aren’t what you thought you would ever hear, let alone something you never want to hear……Veronika has an injury to her brain from the bleed she had before she was born, and we believe that it will affect her movement down the left side of her body, and she will most likely never walk….

I guess at that point in you make a decision, one of two possible options i guess. You either think ‘oh well, if that’s how its gonna be, why bother,’ OR ‘Yes she will walk, and we will come back in when she does and say I TOLD YOU SO’.

Sunday, April 1, 2012

Hmmm

Tomorrow is another start to a busy week…..

1st appointment for Veronika this week is tomorrow with the brain injury rehab specialist. This is our once a year catch up with him
 
will be very interesting what he has to say about Veronika’s past 12 months, its been an amazing 12 months for Veronika with her development,
but

it will be even more interesting to see if he has any ideas on how to treat Veronika.

I am excited to see him, because of how far Veronika has come in the last 12 months. How many milestones she has achieved…..

but

the 1st time we saw him, and her diagnosed Veronika’s Cerebral Palsy(she was 11 months old), he said that he didn’t know how to treat her Cerebral Palsy, as he hadn’t seen the combination in a baby with Down Syndrome….

but that was nearly 3 years ago

so I wonder if anything has changed

…..
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